Category: wheat intolerance

When the Bread of Life contains Gluten

I’ve been staying away from church for a number of reasons.  I walked away from my church of 25 years over a year ago because of a priest and some church members who thought that buildings were more important than people, but that is another story and lots of water long gone under a bridge.  I started attending my son’s church because I loved his minister and because I enjoy my son’s part in the praise band, but after that favorite minister left, I began spending more weekends in another town staying at Bean’s and sometimes attending his church, but overall, mostly hopping back and forth between those two churches. Then RA struck, and I became angry and depressed and yes, maybe God was sometimes a target.   Fast forward to 6 months ago, when I realize that gluten is poison to my body and that quitting it heals my eczema, alleviates some of the pain in my joints, and may help mend the leaky gut that might have led me down the autoimmune path in the first place, and my newest reason to stay away from church is…  I’m allergic to God.

I mean, really, come on… first there was the God the Father thing that is so hard for children who have abandonment issues or who have been abused by their father figure, and now, well, this sort of feels like abandonment, too.  I went back to St. Mark’s this summer and picked a perfect day for it as Bishop Curry was in the house and rockin’ it with one of his energetic and engaging sermons, but when it came time to come to the table so to speak, I was excluded.  The liturgy invites us to come, to eat, it shares the words of Christ, “take eat, this is my body which is given for you… do this in remembrance of me.” I used to be a lay minister.  When the priest hands you the host, he or she says “this is the body of Christ, the bread of heaven.” So, sitting there, I felt and I feel separate now from God.   I am gluten intolerant.  I am God intolerant.  His body is poison to my body.  That is heavy stuff right there.

At Bean’s church they have gluten free crackers for people like me.  We have to ask for them, though, and I don’t like that.  I don’t want to be singled out.  I don’t like being that girl, a problem, a food nut, high maintenance….  I don’t want to bring attention to myself that way.  When I told my old friend at St. Mark’s the reason I didn’t come to the altar that day, he said okay, like he was confused about why I might have told him this.  I was telling him this, because I wanted to come back.  I want to be welcome at that table again.  I want to be able to come to the table and not have to cross my arms to receive a blessing only.  I don’t want to be allergic to God.  At our church, we use these pressed wafers.  Why not have them all gluten free.  You can barely tell they are bread anyhow.  I wonder if the body of God had gluten when Jesus broke bread with his disciples at The Last Supper?   I can eat many ancient grains- teff, amaranth, millet.

It’s estimated that 1% of the population has celiac disease.  That’s not a huge percentage, but that is a good number of people who find themselves unwelcome at God’s table.  It’s food for thought.  Churches might consider this when deciding if they are inclusive and welcoming.  It’s just one more thing, and it might not seem like a big deal, but it feels big to me.

Wicked Wheat

This morning I awoke to a swollen ring finger joint that hurts when I bend it or even when I touch it.  My knees ache and my feet ache when I walk.  Blissfully, my shoulder pain has subsided, but my left elbow is still sensitive to touch and my right thumb is painful to bend [so I don’t bend it].

My rash had receded, my joints were beginning to quiet.  I had started back on plan and had a string of wheat-free, low-carb days only to hear a siren song of cake last night at a home party I attended.  The host said, “you must taste my Preacher’s Cake- homemade with pineapple and nuts- I found the recipe on Pinterest.”  I guess she had me at Pinterest, because delectable cake images flashed across my mind at that moment.  “Just a tiny slice,” I said, because I am apparently deep in denial that wheat actually is the primary cause of these myriad ailments- joint pain, skin rashes, congestion, fatigue.  I say that I believe that wheat is the culprit, with my mouth, but I don’t say it yet with my behavior because either at some level I am in denial or I have not reached a bottom that would allow me to say ‘no more.’

I know that I must sound like the whiniest of the whiny with this blog focused so much on my eating and health worries, but I don’t conceptualize myself that way.  I see myself as strong and stoic and hardy.  I am also a natural detective and so I find myself trying to ferret out the cause of any symptoms that make my life harder or give it lesser quality.  I don’t trust doctors, and given the clusterf*@% that is autoimmune disorders and the way my Hashimoto’s is misunderstood by doctors who insist they know how much and what kind of thyroid replacement I need, I prefer to treat myself with diet and exercise whenever I can and be ready to tell health professionals which direction to point when I am forced to sit on the crinkly paper in their offices.

I believe that the progest/estrogen compounded cream is helping in general and I think with my joint pain in particular, but every time I eat wheat, I exacerbate symptoms and get sent back to square one or at least square 5 or 10.  Last night as I walked to my car after the party, literally 30 minutes after ingesting wheat, I found myself itching intensely in my stomach and chest, and I thought, “oh, &*@%.”

Trial and error has shown me over the past two years that my body cannot process sugar and carbs in any kind of an efficient manner, and that I feel best when I eat paleo and minus processed wheat and sugars.  Unfortunately, I don’t live in a paleo world. I live in Roxboro, NC, where there is a processed/simple/carb around every corner and at every event.  There is no health food store.  I have to drive to Whole Foods in Durham to find the coconut milk I like, the one with vanilla flavor and no sugar.  I can’t find good quinoa here or any alternative flours.  The restaurants do not lean heavily on fresh green ingredients, although I do have some places I can get a quick salad that passes the muster.   It takes a tremendous amount of planning to stay on plan, especially when I am busy and/or stressed.

If you eat paleo, have Hashimoto’s, are near menopause, or feel like you have wheat sensitivities, feel free to weigh in.  I’d love to hear what works for you and share some tips and recipes.  Message me.  We’ll talk.