I found this article today on rheumatoidarthritis.net and overwhelmingly, these things ring so true. I decided to make my own list. Hopefully, if you love someone who has RA, you will take the time to read this list.
My list:
1. My sister was dx with RA 10 years or so before me. I thought I understood. I had NO IDEA.
2. I don’t know what it is like any longer not to hurt somewhere.
3. I get really tired of compensating and asking for help at times like when my hands just won’t work.
4. I’m pretty much tired all the time.
5. There’s a world of pain and fatigue behind this smile.
6. I have always taken pride in being strong and independent; this disease tries every day to take that from me.
7. I feel like I am battling a monster every single day.
8. I get it- you don’t understand, and even when you try, you still don’t really understand.
9. It never goes away. I don’t get to look forward to a cure. All I can hope for is chemical remission where the drugs that put me there could also take me out in any number of other ways.
10. I feel like I have aged 5-10 years in the 15 months since my diagnosis. This frightens me. Sometimes I just cry.
So, wow. This list makes me sound really self-centered- it’s all “I, I, I, and I.” That’s another thing this disease does. It makes you feel self-absorbed and whiny. That is so far from who I think I am.
The most important thing for you to know, though, is this:
I have RA, but it does not have me. I will not stop fighting.
Gifts RA has given me:
1. I live in the moment a little more.
2. I have more compassion for people who live with chronic pain… for people in general.
3. I think I am kinder and gentler on the daily.
4. I have let go of all the anger I used to hold on to, which could have contributed to the firing up this disease/state of inflammation.
5. I practice mindfulness and forgiveness more often.
So, as always, with loss, there are gains. I imagine I will find more gifts as I go along. ~Peace.
I wish I could pray it away from you. I trust in the Lord to hold you in his arms & care. So sorry you have it. I feel the same way but the dr.
said I don’t have it. Who knows.
Love you,
Mom
I do understand. I feel your pain & whine every day about my aches & pains even though I hurt everyday ! I feel guilty whining all of the time. My energy is gone & not able to do what I once did. I am much older than you & it is expected, but not at your age. I would give anything to help you feel better & I pray for you daily ! I love you sweet daughter & pray for you to stay strong, determined, and adamant that you won’t give in. Grasp each day & give it your best, and I know you will! You listed things that put the nail on the head! I’m sure others with RA will agree! God Bless you always! Love, Mom